Guide The Comfort of Home for Chronic Lung Disease: A Guide for Caregivers

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It includes comprehensive therapy schedule, physician specific care protocols, a trained and dedicated clinical team, and patient education — with a focus on continuity of care across the continuum. Pulmonary CareLink: Pulmonary CareLink is an innovative chronic care management program designed to provide a comprehensive multidisciplinary home care plan for patients suffering from chronic obstructive lung disease COPD and pneumonia.

  • How Home Care Helps after a Chronic Obstructive Pulmonary Disease.
  • The Comfort of Home® for Chronic Lung Disease – Caregiving in the Comfort of Home®.
  • Palliative Care and Hospice for End-Stage COPD.
  • The Girl With The Cardboard Port.
  • Common Conditions or Diseases of BAYADA Clients;
  • Palliative Care.

Skin and Wound CareLink: Our care and treatments emphasize prevention, healing, reduction in emergent care and rehospitalization, and comfort using principles of compassion, efficacy, and cost-effectiveness. Balance CareLink: Balance CareLink is a comprehensive program to provide a consistent, therapeutic plan offering best practice intervention for fall prevention and injury reduction.

Our programs, services and initiatives demonstrate our commitment to the provision of excellence, quality care, and achievement of outstanding clinical outcomes for every patient we serve. Servicing the entire Commonwealth of Kentucky, the VNA Health at Home team provides the care and services you need to recover, all in the comfort of your home. HomeCare Elite consists of the top 25 percent of all Medicare-certified agencies and highlights the top and agencies overall.

Send us a message. Toggle navigation. It summarizes the contributions from numerous experts in the field of chronic respiratory disease and chronic respiratory failure. The outline follows the temporal sequence of presentations. As technology advances, therapeutic options for individuals with chronic respiratory failure requiring short- and long-term ventilator support increase. This section will review old and new indications for ventilator therapy, implementation and feasibility of these types of complex interventions, potential methods to improve their applicability and safety, and economic issues resulting from their use.

References to mechanical ventilation are found in the writings of Hippocrates — BC and Paracelsus — However, since the 20 th century, long term mechanical ventilation LTMV has become important in the management of two overlapping groups of patients; those who have recovered from an acute episode of respiratory failure but who require ongoing ventilatory support despite being clinically stable and those who require ventilation electively to avoid the requirement for urgent ventilation.

Added to the above, is the increased awareness of the value of a rehabilitative focus, to enhance function and improve autonomy of the ventilator assisted individual VAI in a non ICU environment. Patients receiving mandatory ventilation in the Intensive Care Unit ICU find themselves in an environment in which, understandably, the attending clinical team is focused on those with acute clinical issues. Their mobility is confined to the length of their ventilator tubing.

Subsequent management outside the ICU will depend on the availability of resources such as a chronic assisted ventilator care unit, a long term acute care unit or a skilled nursing facility. The resource utilization is inversely related to the level of patient independence Fig.

Palliative Care: Bringing Comfort | Johns Hopkins Medicine

Potential sites of care for patients requiring PMV. Sites toward the bottom of the figure have fewer medical resources and lower costs but allow greater patient independence and a higher quality of life. PMV, prolonged mechanical ventilation. With the addition of rehabilitation many VAI are able to leave the ICU for an assisted living facility or even better, to go home, provided they have access to technical and clinical support services. In contrast, the journey of elective ventilation often begins and ends at home.

The Comfort of Home for Chronic Lung Disease : A Guide for Caregivers

It hinges on the prompt initiation of elective ventilation for those whose conditions are progressing to cardio-respiratory failure. Good clinical and laboratory monitoring is important as the onset of respiratory failure may first be identified through a deterioration of nocturnal blood gases. Progression may include brief exacerbations with respiratory failure requiring ICU management and relatively easy weaning. As with mandatory ventilation, it is necessary to have access to home respiratory care services as well as scheduled monitoring after the initiation of ventilator support.

The following example illustrates the relevance of monitoring in those likely to develop respiratory failure. After an episode of pneumonia a two channel overnight recording showed satisfactory oxygenation, mild nocturnal hypercapnia with periodic likely REM related worsening of gas exchange Fig.

E-care Locator

Bi-level positive airway pressure ventilation was initiated electively Fig. She remains stable on nocturnal non- invasive positive pressure ventilation. The prevalence of home ventilation is influenced by the increasing incidence of the underlying disorders, the increased knowledge of the healthcare providers HCP regarding the option of being safely ventilated outside of the ICU and the guidelines and recommendations of professional societies regarding LTMV [ 3 ].

It is also influenced by the attitudes and preferences of the patient and family as well as the availability of formal and informal caregiver support services. In Europe Fig. If the patient is unable to return home immediately, a chronic assisted ventilatory care CAVC unit will provide a safe, non-acute care environment with a rehabilitative focus, to optimize health related quality of life and promote autonomy. The CAVC unit requires a multi-dimensional continuum of services, by an interdisciplinary team trained both in ventilator management and rehabilitation.

The preferred patient is medically stable, mentally alert, understands that ventilatory assistance is long term, is prepared to participate in comprehensive training and will relocate with appropriate supports. In order for a patient to return home, it must be safe and have the required utilities as well as trained care givers. The availability of home health care, technical support and organized follow-up is critical. When asked to give their experience of LTMV, ventilator-assisted individuals voiced both positive and negative experiences regarding mobility, symptoms, equipment concerns and social implications.

Disappointingly, not all users felt that they had made an informed choice when they started ventilation or when it became permanent. Ventilator-assisted individuals VAIs have noted the relevance of both physical and psychological adjustments to being ventilated [ 6 ].

The adjustment to LTMV is more difficult when it is initiated in the ICU especially if impaired verbal communication limits their decision to initiate ventilation. The following quotes are illustrative of some of the experiences of the ventilator-assisted individuals:.

What is Home Care?

Enhancing quality of life through improvements in healthcare funding, healthcare professional education and ventilator equipment design. Reducing barriers through improved public education, access to government programs and community accessibility. Educating prospective users about LTV, accepting it as soon as it is indicated and being aware of the personal responsibilities involved. Partnering with an experienced VAI whose expertise can be of great value in establishing optimum care.

Separate from the paid caregivers, informal caregivers, usually family members, are essential to the development of an environment that enables the ventilator-assisted individual to live safely at home.

These informal caregivers often underestimate the care burden involved, which is especially high when that individual also has neuromuscular disease NMD. Semi-structured caregiver interviews [ 7 ] of those looking after patients with NMD highlighted their sense of duty and their huge commitment. However caregiver burnout was evident and the need for professional support, especially in the initial weeks of their loved ones returning home, was evident. I have a herniated disc too. I think it is all from him.

Knowing about the disease really helps. Regular pre-scheduled follow-up, the ability for VAI initiated medical support and respite care for the ventilator-assisted individual or caregiver, are especially important. The frequency and complexity of follow up is determined by both medical and social factors.

Identifying the cause of infants' lung disease

It will vary among individuals and in the same individual at different points in time. The arrival of modern telemedicine technology has resulted in more frequent home based rather than the institutional follow-up. For example, video-conferencing is achievable with a personal laptop computer, linked to healthcare professionals through videoconferencing software and high speed internet. Regular sessions can be scheduled for the VAIs convenience. The patient, family, caregiver and health team can all be present as can a pulmonologist and a community care access case manager. This approach has the advantage of enabling more frequent follow-up at home and broad health team access.

It is also less expensive than home visits. Although the spectrum of long term ventilation begins with either mandatory or elective ventilation, the ideal destination is home or if this is not possible a safe non acute care facility with a multidisciplinary team trained in both LTMV and rehabilitation. User perspectives emphasize that the most difficult period of coping is the first few months after returning home, when both physical and psychological adjustments are necessary.

Caregiver burden is substantial and under-recognized both by the healthcare team and by the caregivers when they make their initial commitment to accept a ventilator-assisted individual at home. Access to home healthcare and technical services is critical to successful home ventilation. Telemedicine technology using personal computer video-conferencing software has enabled more frequent, less expensive follow-up with improved access by the patient and the caregiver to healthcare professionals. The use of non invasive ventilation NIV is an option in acute hypercapnic respiratory failure, cardiogenic pulmonary oedema, acute respiratory distress syndrome ARDS , community-acquired pneumonia, and weaning failure.

Evidence supports NIV during complicated bronchoscopy, some cases of transoesophageal echocardiography, and in some interventional cardiology. NIV should be applied under close monitoring, and endotracheal intubation should be promptly available in the case of failure. A trained team, careful patient selection and optimal choice of devices, can optimize outcome of NIV. There is strong evidence Level A for the use of NIV to prevent ETI in acute on chronic respiratory failure, acute cardiogenic pulmonary oedema, and to facilitate extubation in patients with acute exacerbations of chronic obstructive pulmonary disease COPD.

Less evidence supports the use of NIV for patients with severe acute asthma exacerbations, post-operative or post-extubation acute respiratory failure ARF , pneumonia, or acute respiratory distress syndrome ARDS [ 8 , 9 ]. Nevertheless, many other potential applications have been proposed [ 12 ].

This review will focus on potential new indications for NIV. Although potentially risky, bronchoscopy may be required for some severely hypoxaemic patients [ 13 ].

The palliative care process

On the other hand, non-use of bronchoscopy in these high risk patients may result in less effective, empiric treatment. Until recently, when bronchoscopy wws needed in hypoxaemic conditions, only ETI and mechanical ventilation were available to provide adequate ventilation and oxygenation. Unfortunately, invasive mechanical ventilation is associated with complications related to ETI, baro- or volutrauma, and the loss of airway defense mechanisms.

NIV has the potential to avoid these complications while ensuring a similar level of ventilatory efficacy and control of hypoxemia. CPAP was able to reverse reductions in tidal volume and respiratory flow associated to flexible bronchoscopy in spontaneously breathing young children [ 18 ]. In patients with acute exacerbation of COPD due to community-acquired pneumonia, in danger of ETI and unable to clear secretions, NIV with early therapeutic bronchoscopy was feasible, safe and effective [ 19 ]. A recent study suggests that in awake, critically ill patients with moderate to severe hypoxaemia undergoing bronchoscopy, the application of NIV is superior to High Flow Nasal Cannula Oxygen in oxygenation before, during and after the procedure [ 20 ].

NIV during bronchoscopy may be performed by means of commercial or modified oronasal or full-face masks [ 21 ]. These reports support the use of NIV during fiberoptic bronchoscopy especially when risks of ETI are high, such as in immunocompromised patients. However, an expert team with skills in both endoscopy and NIV should be available for any emergency [ 12 ].